Since last week, things have gotten a little better, except for the fact that he started getting a rash on his arms, the PA said that it was Graft versus Host disease. This is where the body starts to reject the new marrow, they have told us that a little of this disease is good, because it shows that the body is working to accept and make the marrow work. They also told us that it ensures that the Luekemia won't come back. So we're not too worried about this. It can effect the skin, eyes and liver. They have increased his steroids to see if they can get rid of it. Over the weekend it hasn't started going away, but has spread over his whole body. We go into the clinic tomorrow, so hopefully they can do something different. Besides that, this past few days have been better. He went to the clinic last Wednesday, and they told him this will take awhile for him to feel better. They also told him to exercise as much as possilbe, because the steroids will make his muscles very weak. After coming home he decided to walk up and down the stairs a couple of times. Then the next day, he did a few more times and we went for a walk at a park. He has been doing more each day, and walking in the park each day. I hope the weather permits us to keep doing this, I think it is good for him to get out of the house, although home is much better than the hospital.
He has also been awake more during the day, than last week. I think things are slowly progressing for the better. He actually looks great to me. He is eating well and talking more, he has a hard time sleeping at night, this might be because of the steroids too. Gotta love all the meds and their side effects!
I am very grateful that he is doing so well. He opened a fortune cookie and his read, that his current plans will succeed within the year. I don't usually believe these, but this one I do. I know we have been so blessed and continue to be blessed. Thank you again for your concern, thoughts, and prayers.
Cindee
Family Pics Spring 2010
14 years ago
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