I Don't Think We Knew What We Were In For!

If anyone has known someone who has gone through a bone marrow transplant, please let us know. We were not expecting this at all. I think they can tell you things, but until you're going through it, you just don't know what it's like. I need to talk to someone, and find out if this is normal.
They are having him come weekly to the clinic, because he is taking steroids, it makes his muscles very weak, so he has not been moving too much this past week. Yesterday we had to go to the clinic, and it was hard for him to walk in. Then we were there for a couple of hours waiting for them to come and talk to us. After that we had to go see the cardiologist, to follow-up with his low blood pressure. He told us that he thought things were fine and that we could come and see him on a as needed basis. So by the time we got done, he was exhausted. We had to get a wheelchair to take him out to the car. Needless to say, he rested the remainder of the day and night. Ususally the day after is hard on him, because he is so tired from the clinic, so today has been the same, but a little worse, he has been very nauseated and threw up a couple of times.
It is very frustrating for us. He does okay some of the time, but most of the time he feels miserable! The doctor did say that this is all normal, that it will take some time(months) before he feels better, and that this is a very bumpy road, and also to expect to be admitted to the hospital at least once during recovery. We were very discouraged after yesterday.
So if anyone can tell us that what we are going through is what we should expect, please let us know. We just need someone to tell us that it does get better.
We still are taking one day at a time, and are grateful for all of the help and concern from everyone. We have a great family, and great friends in our lives. We know that we just have to keep having faith that he will soon get feeling better again. Thank you for everything.
Cindee