Friday, July 31, 2009

Good news again!


Kurt went to the hospital today to get his liver checked, the levels had come down enough that they are going to start the transplant (YEA)! So tomorrow he has to go and get a shot to protect his mouth from getting sores in it during the radiation, then on Sunday another shot for the same, and Monday a shot and they will do a minor procedure to put in a central line into his chest and take out the pic line in his arm. Then on Tuesday back to his second home for radiation for 6 days, and chemo for 2. He will rest on August 12th, and then on August 13th, he will get the marrow from a 21 year old from Europe. That's all we know about him, but he is as perfect as a match that they could of found, except for his age. Then the hard part, we will be apart for about 4-6 weeks, and then he will have to be watched at home for another month. We're getting very apprehensive about this, but very excited to get on with our lives and hope that they will be as normal as possible.
Thanks again for everything. We really appreciate the kindness shown by everyone. We know that Heavenly Father has blessed us in so many ways, and that I think he is trying to teach us patience, because we are not very patient people. We have become closer and our testimonies have grown too.
Cindee

Thursday, July 23, 2009

This is one crazy ride!

It's has been a long time since I wrote. Kurt got out of the hospital from the
e-coli infection. and his counts started to go back up. He started to get back on his feet again. We took a little getaway to Park City last weekend. He did fairly well, but got tired. It was an interesting weekend, but a too long of a story to tell. We had a good time.
I haven't mentioned that he was going to start the transplant process on July 27th, because of the last time with the other donor, I didn't want to jinx it, but it has been jinxed. Yesterday we went to meet with the doctors and sign the papers, everything sounded great and looked good with Kurt and the donor. So it was a good day. They did tell us that Kurt's liver counts were elevated and they wanted to take some blood and do another check. We went home and felt pretty good about everything. Then today the hospital called and told Kurt to come up if he could, because his liver counts were higher, so they wanted us to talk to a GI doctor. He told us that it could be the medications, so they took more blood again today. He called back this afternoon, and told us they had gone down a tiny bit. So we will go in Saturday and have blood drawn again and wait for the counts to come back, and then they will decide if we start the process this week of postpone for a couple of weeks. This is extremely messing with our minds. We are going to have a family fast this Sunday, so hopefully evetything will go as scheduled and Kurt will be able to start the transplant. I will let you know when we find out a decision. Thanks again for your concern and friendship.
Cindee

Thursday, July 9, 2009

Little hospital stay

Sorry it's been awhile since I've written. Kurt came home from the 3rd round of consolidation chemo on June 22nd. That week we started going back and forth to the clinic to get his counts tested and get transfusions of blood and platelets. During this time we try to be very careful as to not let him get around people and get sick. But try as hard as we may, his temperature started going up on Friday the 3rd, and by that night it had gone higher, so I decided to call against Kurt's pleas not to. They said we better come in and have it checked. We got up there around 11:00 pm and they admitted him and started to take blood cultures. They said he would probably be there until Sunday, because it takes that long to grow the cultures. Needless to say, Kurt and I were very upset about staying. Saturday afternoon, we talked to one of the PA's and she said that they had found an infection and they wouldn't know exactly what it was for a couple of days. They told us that he would have to stay in until his counts came up and he could fight the infection better on his own. Now we were both very down, because we had no idea how long that would take. The 4th of July was not too great. Kurt was not feeling too good, and was tired that night, so I went with Kelli and her family to Riverton (and I think with everyone else in Salt Lake City) to see the fireworks. It was fun, but I felt bad that Kurt was in the hospital.
He started slowly getting better, and Wednesday, the 8th, he did get to come home. So it wasn't too bad. Now we go back on Friday to get his counts tested again, and hopefully they are starting to come back up this week and we will be able to do some fun things while he feels good, and hopefully he doesn't get sick soon again. Oh they did find out what the infection was, it was E-coli, and they told us it was good he got in there that soon, becuase with his counts being almost nothing, he would of gotten very sick, very fast. Although he still hasn't thanked me for calling and putting him in the hospital, I think he's grateful that I did, and that he got better so quickly.
Thanks again for all of your thoughts, prayers, cards, and concern.
Kurt & Cindee