Another Week Done

This past week has had some ups and downs again. We went to the clinic last Tuesday, and Kurt's liver counts were high. They told him it could be the GVHD and that they were concerned. They increased his steroids again, which we were not too excited about, and told us to come back on Friday to see if they were still going up. It was discouraging that day, because we were hoping that they would start decreasing his steroids. He also has been getting weaker in his legs, which is due to the steroids, and getting more lightheaded. So he has a hard time walking into the hospital. We went back on Friday, and he was very lightheaded that day. The nurse that was taking care of him didn't realize that he has been this way for awile and that they are trying to solve the problem, so she got all excited and told the PA. The PA did come in quickly that day, and was very concerned about Kurt, but I told him that this has been going on for a few weeks now. I don't understand why if we are going to see different PA's all of the time, that they don't know what's been going on. So he had the nurse take all of these blood cultures, so of course we had to sit around and wait until the tests came back. We were up there for 4 hours. At first the PA told us that his liver levels had gone up. Then one of the 5 big doctors came in and was asking Kurt how he was doing, and told us that the liver levels and slightly gone down. We were not very happy about this whole day. He did say that his platelets were down, and that could be due to the GVHD, so he wanted us to come back on Sunday to get those checked again. It's very tiring to keep going back up there, especially when they always want us to come in the morning, and Kurt has a hard time in the morning, that's when he usually likes to sleep.
So this morning we went back to the hospital, and had to go up to the 8th floor, because the clinic is closed on the weekends. They are usually quick and nice to see. He did get weak again, but I had him in a wheelchair, so it was better. The nurse had gotten the results back in about 30 minutes and told us that we could go home, and just come back for our regular visit on Tuesday. At least we don't have to be there as early, so hopefully it will be better.
Even though this is up and down, I can see an improvement in him from a few weeks ago. He is awake more, wants to eat more and is really trying to regain his strength. He has started to walk on our treadmill a few minutes each day. It's good to see some things improve, and I'm sure in time he will keep improving and finally feel good again.
Thanks again for your concern, we know that we are being blessed not only from the doctors care, but from our Heavenly Father, and all of your prayers. We appreciate our families so much with all of their help right now, and by getting Kurt better will be how we can pay them back.
Cindee