Things are looking better!

Well I said things can change quickly and they have. Sunday was a really bad day with the fevers so high and his heart rate was really high as well, they almost put him in ICU. His brother Kerry gave him a really nice blessing and he was calmer through the night. On Monday, he still got a couple of high fevers, but his heart rate wasn't as fast. They kept him on Tylenol and then put a fan in his room and some ice bags around his body. The doctors came in and told us that it is probably going to get better as his counts go up. Around 5:30 he had some Tylenol and then in about a half an hour he was feeling pretty good. I had brought up some lasagne that someone in our ward had made for my lunch, and he really wanted some. We shared and that was the first time that he had eaten dinner, he said that it tasted really good. He ate some canned mandarin oranges and a popsicle. He was really acting so much better, it was great to have him back.
Tuesday, I called him and he sounded a little better as well. I came up after work and he was doing really good, they said his fevers had stayed down most of the day, so when I got here, I asked him if he wanted to walk, he said that he would do it. He also drank a boost drink yesterday, and then he had one today. They said that is good because they have nutrients and calories. They are counting every calorie that he eats. I talked to the PA today, and she said his numbers are coming up pretty good. They said today they are at 300, when the nutifil gets to around 500 and the fevers stop they will think about letting him come home, so keep praying that everything works well in the next week or so! I just want to thank everyone for the fasting, prayers and concern. I know that Heavenly Father has heard all of our prayers and taking care of him and helping the doctors know what to do for him. Thank you again.

Transplant

I think I forgot to put this into one of the blogs, we had just been so concerned with the fevers. Last Monday, we asked for the coordinator Rachel, and she came in. Kurt was worried about the donors and if they matched. She did tell us that none of his siblings matched. Kurt was down a bit, but I told him that now they would look for someone in their 20's and that he could live a lot longer with some young cells in him. This would just delay his procedure a little while longer. They did a preliminary search when he first came in, and found a possible 218 donors. Now what they do is narrow that search down the to top 5 or 6, and try to locate them. This is what takes a long time, because the registry is world wide, and some people may have moved and not given a forwarding address. Once they locate them, they have them do a blood test, and it takes about a week to find out. So we are just waiting and hopefully it won't take too long.

This is the worst roller coaster ride I've ever been on!

Wow how things can change. He was doing great yesterday until around 2:30 and then he started to get the shakes again and his fever climbed again. It kept going up and then it would come down. I guess it did it again all through the night. I came up around 1:00 pm on Sunday, and he was doing better, then he had to go have a chest x-ray and then he got the shakes again, and the high fever of about 105. I am having a hard time watching him go through this, and I know that it is extremely hard for him to go through. Hopefully a better day is coming!

The fever finally broke!

Well I called Kurt yesterday morning and he told me that the fever had broke. I was so estatic. I came up that afternoon and he was doing really well. He was talking more to me, and then he went for a walk. He hadn't done that in 8 days. It was so good to see him be more of himself. Then he ate some dinner. It was my birthday that day, and he said that I wanted this for my present, so he gave it to me. But now today, I came up, and he was doing even better, he was on the computer, and it was great to see him this way. But then he got up to go to the bathroom, and I went to get him something, and when I came back he was shaking again. I told the nurse, and they took his temp, and it had started going up again. Now where just trying to find out why. I will get back to this and keep you posted. They gave him some demoral to help with the shaking, so most of the day is has just been sleeping. They keep coming in and checking his fever, and it goes up and down, but he seems comfortable right now. I will stay most of the night again and help him. This is going to be very frustrating and long to get him better. I think we will learn the virture of patience. They did give us some encouraging news today, that his nutrifil (and I'm sure I'm not spelling any of the medical words right) was slowing going up, in order for him to go home his count needs to be 500 and his today were 32, a little ways to go, but at least it's better than 0. We are so grateful for small things now a days!

What a horrible week!

Wow what a week! I don't even know where to start. Last Friday we got the news that Kurt's marrow was clean, but he still had this high fever. They decided to check his blood and see if there were any infections, but couldn't find any. He still had the fever on Saturday and just slept all day and didn't eat or talk, and then again on Sunday, but they found a stomach infection and started a different anti-biotic. Then he still had the fever on Monday Tuesday, Wednesday and Thursday. They did a CT scan and a MRI on Monday, then on Tuesday they did a Lombard puncture. On Wednesday, they let him rest, but then he got the fever really bad and it went to 105 the last night and Wednesday. They ran another test to check his oxygen level and if it had gone higher they would of put him in the ICU. So I had a hard time leaving him, but they said they would call me if he changed. On Thursday, they were going to do another test and sedate him and go down through his esophagus and check his heart valves to see if there was any infections. Then when I got here, they took him to do another ultrasound of his stomach, and then another chest x-ray. I think they have looked at every part inside his body. Today they still don't know why he has the high fever, but they did give him a shot that is suppose to help his white blood cells start working, so they can see if that will take care of the fevers. From all of the tests they did today, they still don't know what it is. It is very confusing, and Kurt is getting frustrated. Hopefully something will start to work and he can feel better again.
Thanks to everyone for your prayers and concern. We feel the prayers on our behalf, and know that one day this will all be over and he will be his self again.